Interactive Continuum Poster from 3rd Annual Summit
One of the aims of the 2010 Summit was to gather participant's
input about what the ideal continuum of care would look like for
those with dementia in rural and remote areas, the "continuum" being the
healthcare continuum from pre-diagnosis/community-based services
on one end to long-term care/institution-based services on the other. Below is an interactive version of the poster from the 2010 Summit.
The poster below was displayed at the 2010 Summit with the Pink Notes (identifying research team projects) already placed along the continuum.
Attendees were encouraged to write down an innovation in care for rural and remote seniors on a Yellow Note and place it along the continuum
As well, attendees identified 'service gaps' for rural and remote seniors and those were written on Blue Notes and placed along the continnum.
Notes for using this page:
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Which was attached to Continuum poster at this location.
Summit 2010
*Service Innovation*
Professional caregivers specially trained to provide in-home advice and assistance to dementia patients and families. These experts could train local individuals to provide in-home care and respite. Training for experts and local individuals could be done via telehealth. Telehealth could be used to provide communication and debriefing of these providers.
note added by Summit 2010 participant
*Service Innovation*
Nurse or Nurse Practitioner to take care of dementia care arrangements for dementia patients living at home. e.g.: to give patients and caregivers a specific contact person at the local level to coordinate programs and help track patient progress. Family doctors are often too buy to make referrals recommended by specialists, etc, or patients may resist.
note added by Summit 2010 participant
*Service Innovation*
Dementia Case Management.
Two RNs provide case management for URBAN dementia patients ware are NOT Home Care clients in Calgary.
note added by Summit 2010 participant
*Service Innovation*
Incorporate therapeutic Recreation/Activity/OT in assessing for what activities will be advantageous and then develop those activities/interventions to keep people at home. This will decrease anxiety and aggression and increase caregiver relief.
note added by Summit 2010 participant
*Research Team Project* Translating Research in Elder Care (TREC) - this multi provincial study includes SK, MB, and AB long-term care facilities. The study will examine--by employing both qualitative and quantitative research methods--the role organizational context plays in establishing best practice and instituting new evidence-based practice in the long-term care sector in the Canadian Prairie Provinces.
*Research Team Project* Implementation of an Educational Program in LTC: Utilization of the PARIHS Framework to Guide the Way - this study will examine key factors of facilitation that support implementation and sustainability of the Gentle Persuasive Approaches Program in Long-Term Care, and what processes facilitators use to cause the change within an organization.
*Research Team Project* Exploring Incident Reporting by Continuing Care Aides - this project will build on earlier research by the team that found care aides experience a disproportionate amount of physical assault compared to other professions. By analyzing the results of focus groups held with care aides in June 2010, further understanding of the factors that influence reporting of assault will be explored.
*Research Team Project* Evolution of Assisted Living, Personal Care, and Long-term Care Facilities in Aboriginal Communities - this project plans to identify and describe care facilities located in First Nation and Métis communities in Saskatchewan. The project will examine the complex jurisdictional and funding challenges that were needed to overcome in order to create these facilities.
*Research Team Project* Caring for a Rural Family Member with Dementia - this study will improve our understanding of the experiences of rural and remote family caregivers and the supports and services that would help them in their role.
*Research Team Project* A Telehealth Facilitated Support Group for Caregivers of Individuals Diagnosed with Atypical Dementias - since January 2009 the team has provided monthly telehealth-delivered support group for caregivers of individuals with atypical dementias. Caregivers of these less common dementias are under-serviced and geographically isolated.
*Research Team Project* Development and Evaluation of a Telehealth-Delivered Exercise Intervention - this project examines the feasibility and acceptability of a telehealth-delivered exercise program for Rural and Remote Memory Clinic patients and their caregivers.
*Research Team Project* Pilot Study on the Experiences of Sons as Caregivers - this study will examine the experiences of sons as caregivers, over time, for parents with dementia. The study will involve interviews with sons who have self-identified as primary caregivers to parents living with dementia in rural and remote areas of
Saskatchewan.
*Research Team Project* The Rural and Remote Memory Clinic at RUH at the U of S. The objectives of the memory clinic study are to increase the availability and accessibility of dementia care in rural and remote areas, to determine the acceptability of the one-stop clinic and of telehealth versus regular follow-up, and to develop culturally appropriate assessment protocols.
*Research Team Project* Dementia Diagnosis and Management - this project explores the assessment and management of people with dementia by family physicians and nurse practitioners in rural and remote Saskatchewan. The study looks at a variety of factors that impact rural health care provider's decision making and support needs for providing care to families affected by
dementia.
*Research Team Project*
Members of the neuropsychological team at the Rural and Remote Memory Clinic at the U of S have been working in partnership with members of the home care staff at the Keewatin Yatthé Regional Health Authority to develop the Northern Cultural Assessment of Memory (N-CAM), a cognitive screening protocol that is appropriate for Aboriginal seniors.
*Service Gap*
Improve Dementia End of Life Care
Help support formal and informal caregivers in transition to comfort based care.
note added by Summit 2010 participant
*Service Gap*
Your research in Care Aide Assault was bang on. The helplessness and blaming are what keep care aides from reporting all assaults. Thanks for your understanding and commitment to changing this.
note added by Summit 2010 participant
*Service Gap*
There is a lack of support and resources while the dementia patient is still at home. More support is needed for the caregiver in providing day-to-day care, supervision, etc. while maintaining all of the other aspects of normal life (work, household, etc.). Home Care is an incomplete attempt to meet some of these needs.
note added by Summit 2010 participant
*Service Gap*
This has been a huge resource and helped connect patients/families to resources, troubleshoot issues and transition to Home Care.
But needed for rural seniors.
note added by Summit 2010 participant
*Service Gap*
Driving Cessation
- education/support for patients/families to prepare for, and then cope with driving cessation.
- increased transportation resources for rural and remote seniors with dementia who can't drive (high risk social isolation and need to move from rural locale)
- is there a need for rural based road test? (e.g.: DriveABLE & OT tests in cities)
note added by Summit 2010 participant
*Service Gap*
Increase knowledge, skills, and attitudes of formal and informal caregivers with respect to dementia-related behaviors/disturbance.
So often increases in behaviours can decrease caregivers coping while simultaneously posing a barrier to care (person with dementia is less attractive to be admitted to facilities) culminating in crisis.
note added by Summit 2010 participant
*Service Gap*
Clear understanding of education gaps and minimal competencies required for all health professionals dealing with dementia patients.
Then: need strategies to bridge these gaps effectively.
note added by Summit 2010 participant
*Service Gap*
Increasing dementia awareness, perhaps through school-based programs and activities.
e.g.: school kids make projects for nursing home.
note added by Summit 2010 participant
You are invited to use the
provided stickies to share your feedback Please use a Blue sticky to write down something you see as a service gap in the care for Rural and Remote seniors with dementia and stick it on the poster where it best fits along the continuum
Please use a Yellow sticky to write down an innovation in care for Rural and Remote seniors with dementia that you know of and stick it on the poster where it best fits along the continuum
We have placed some of the projects currently undertaken by the research team along this continuum to help to visualize where they may fit.
You are invited to use the
provided stickies to share your feedback
Please use a Blue sticky to write down something you see as a service gap in the care for Rural and Remote seniors with dementia and stick it on the poster where it best fits along the continuum
Please use a Yellow sticky to write down an innovation in care for Rural and Remote seniors with dementia that you know of and stick it on the poster where it best fits along the continuum
We have placed some of the projects currently undertaken by the research team along this continuum to help to visualize where they may fit.
