Caregiver & Support

Dementia and End of Life Care: a resource for family members supporting a person with dementia, this web-based tool developed by the Alzheimer Society of Canada provides information to support key decisions regarding end of life care (aussi disponible en francais).

Dementia and moving to a Long Term Care (LTC) home: a resource for individuals with dementia and their families to help with the many complex isues in moving to a long term care home. This set of evidence-based resources support families and individuals with dementia as they: 1) consider a move to long term care, 2) prepare for a move, 3) handle moving day, 4) adjust after a move. This resource has been developed by the Alzheimer Society of Canada (aussi disponible en francais).

The Alzheimer Society of Saskatchewan offers information, education, and support for people affected by dementia, their family, and caregivers through their website, and through the Dementia Helpline at 1-877-949-4141 or helpline@alzheimer.sk.ca

BBC Health has produced a short, interactive, video Living at home with dementia which shares the stories of three individuals who are living with dementia at home, in their community.

Links to information about caring for a person with dementia: The Alzheimer's Society in the United Kingdom has information about support after a diagnosis of dementia, and caring for a person with dementia. From the USA, the Family Caregiver Alliance provides condition-specific resources for caregivers and the National Institute on Aging provides caregiving resources for those caring for someone with Alzheimer's disease.
31 minute video presentation
"A Passion for Engaged Caregiving and Stage-Appropriate Activity for Individuals with Frontotemporal Dementia". A 31 minute video produced in 2012 through the facilities of eMAP at the University of Saskatchewan featuring Donna Dalziel. This video was produced to share the engagement activities that Donna has developed for use with individuals with frontotemporal dementia.

Personal stories of spouse caregivers of individuals with frontotemporal dementia.
In 2012 three members of the telehealth-delivered support group for caregivers of individuals with frontotemporal dementia recorded their personal experiences as caregivers.

   

Resources and Information for Caregivers of Individuals with Atypical Dementias (0.1 MB)
Updated in 2011, this document was prepared for members of the telehealth-facilitated caregiver support group for spousal caregivers of individuals diagnosed with atypical dementias. It has been added to our website because it is a useful resource for any caregiver of someone with an atypical dementia. This pdf contains links to useful web-based resources as well as handout on Managing Challenging Behaviours in Frontotemporal Dementia.
Government of Saskatchewan Individualized Funding information
This link provides more information about applying for the Individualized Funding program offered through the Government of Saskatchewan which can be accessed as an alternative to the Home Care program.

Resources & Tools

Dementia Friendly Saskatchewan: the Alzheimer Society of Saskatchewan, as part of their Dementia Friendly Communities initiative, has developed a Municipal Toolkit that communities can download and use to become more dementia friendly. Development of this resource included an extensive review process in which people with dementia, care partners, members of the Dementia Friendly Communities Provincial Advisory Committee and other stakeholders provided input. This process has helped to ensure that the Municipal Toolkit is specifically tailored to a uniquely Saskatchewan lens.

brainXchange: the brainXchange site can connect you with resources about dementia. The site is dynamic with regular up dates, and interactive forums. You can subscribe to their newsletter to receive information in your inbox.

Indigenous Cognition & Aging Awareness Research Exchange (I-CAARE): factsheets imageA website hosted by members of CCNA Team 20: Indigenous, the I-CAARE team's goals are to explore and promote healthy aging with Indignous Peoples, and raise awareness about cognitive health in Indigenous communities. As part of this work the team has created a series of culturally safe factsheets about dementia which are available to download to print and share from their website.

The Northern Cultural Assessment of Memory (N-CAM): was developed by clinical researchers and graduate students at the Rural and Remote Memory Clinic in partnership with front-line health care workers from Keewatin Yatthé Regional Health Authority, and in consultation with Indigenous seniors and health care staff from the Saskatoon Community Clinic, and with support from the Indigenous Peoples Health Research Centre and Northern Medical Services. Dr. Margaret Crossley and Dr. Debra Morgan hosted an online webinar on October 29th, 2015, about the N-CAM with brainXchange and the video of the webinar (65 minutes) is available on vimeo.

74 minute recorded lecture presentation
"Developing and Sustaining a Community-Based Participatory Research Program in Rural Dementia Care". A recorded lecture presentation (74 minutes) given by Dr. Debra Morgan to the Western Regional Training Centre on Health Services Research at the University of Saskatchewan on November 21, 2014. Dr. Morgan provides an overview of the the team research program, some background on the team members, and shares some community-based research experiences that the team has learned from over the years.

Gateway to Rural International Initiatives in Dementia (GRIID): A website for sharing dementia initiatives and information hosted by an international team of dementia researchers, practitioners and service providers seeking to advance the provision of dementia care support and services in rural areas around the globe.

Bournemouth University Dementia Institute (BUDI)- Bournemouth University, Dorset, UK 
From the BUDI mission statement: "We are committed to creating an inclusive and supportive society for people affected by dementia.  We will work to educate communities and support those providing care through the production of high quality research, delivery of evidence based education and training, evaluating services and providing consultancy on models of care and design."

Clinical Guidelines and Related Research for Dementia Diagnoses (0.2 MB) 2010
Prepared for the Rural and Remote Memory Clinic, by Nicole Haugrud, Lisa Lejbak, Margaret Crossley, & NET Team University of Saskatchewan.

Baycrest: Located in Toronto, is one of the world's premier academic health sciences centers focused on aging. They maintain an excellent collection of online resources from around the world aimed at people living with dementia, and caregivers of people with dementia. Through its strengths in research and education, Baycrest is using the power of inquiry and discovery to improve the health of tomorrow's elderly while at the same time care for and enhance the quality of life of the elderly today. 

More Information about Dementia

Multi-method investigation of Dementia and Related Services in Saskatchewan: Final Report and Recommendations (2 MB) The RaDAR Team and the Health Quality Council partnered to conduct the first-ever provincial evidence-based analysis of gaps between actual and best dementia care practices. This 3-part study included a best practice review, an analysis of 10 linked administrative health databases to identify the 12-month incidence and prevalence of dementia (by health region, age group, gender, and rural/urban residence), and an environmental scan of health services by health region in Saskatchewan.

Sleep: a critical but overlooked aspect of dementia management website summary based on a critical review research project carried out by the Sleep and Function Interdisciplinary Group (SAFIG), Faculty of Rehabilitation Medicine, University of Alberta.

Canadian Consortium on Neurodegeneration in Aging (CCNA): The vision of the CCNA is to bring together 20 research teams involving over 340 top Canadian researchers in the field of neurodegenerative diseases affecting cognition such as Alzheimer's in a collaborative and synergistic space. Researchers will work on bold and transformative research ideas to make a difference in the quality of life and the quality of services for those living with dementia and their caregivers. RaDAR Team members are also members of CCNA Team 20. Team 20 focuses on rural and Indigenous issues in dementia care, with the rural focus led by Dr. Debra Morgan and the Indigenous focus co-led by Drs. Jacklin and Bourassa.

The Fourth Canadian Consensus Conference on Diagnosis and Treatment of Dementia (2012) Official Website, designed to allow you to view and download the evidence-based recommendations and supporting materials developed through the Fourth and Third Canadian Consensus Conferences on Diagnosis and Treatment of Dementia (CCCDTD3).

Rising Tide: The Impact of Dementia on Canadian Society
Prepared in 2010 for the Alzheimer Society of Canada, the Rising Tide report outlines the projected social and economic costs of dementia in Canada.

The Dementia Services Development Centre (DSDC) – University of Stirling, Scotland
The DSDC works to disseminate research and good practice about home and hospital care for people with any type of dementia including Lewy body, multi-infarct, vascular and alcohol-related dementia, as well as Alzheimer’s disease.

The Department of Health National Dementia Strategy – England
The first ever National Dementia Strategy is a landmark document that aims to transform the quality of dementia care in England. It will increase awareness of dementia, ensure early diagnosis and intervention and radically improve the quality of care that people with the condition receive.

World Alzheimer Reports (2009 to current)
Published by Alzheimer's Disease International, these annual reports provide a picture of the global impact of Alzheimer's disease and dementia, and contain important policy recommendations.